TY - JOUR
T1 - European Health Information Portal
T2 - A one-stop shop for health information
AU - behalf of the Population Health Information Research Infrastructure and the Health Information Portal
AU - Tolonen, Hanna
AU - Saso, Miriam
AU - Unim, Brigid
AU - Palmieri, Luigi
AU - Schutte, Nienke
AU - Peyroteo, Mariana
AU - Lapão, Luís Velez
AU - Habl, Claudia
AU - Bogaert, Petronille
AU - Pries, Cara
AU - Pentz, Richard
AU - Mathis-Edenhofer, Stefan
AU - Schmidt, Andrea
AU - Grabenhofer-Eggerth, Alexander
AU - Weiss, Johannes
AU - Sagerschnig, Sophie
AU - Gottlob, Anita
AU - Dolanski, Lorenz
AU - Degelsegger-Marquez, Alexander
AU - Gruber, Beate
AU - Habimana, Katharana
AU - Delnord, Marie
AU - Vyncke, Kim
AU - Krzywania, Tadek
AU - Abboud, Linda
AU - Devleesschauwer, Brecht
AU - De Lizoreux, Barthélémy Moreau
AU - Derycke, Pascal
AU - Daubresse, Pierre
AU - Milbeck, Sasha
AU - De Ridder, Karin
AU - Van De Catsyne, Charles Andrew
AU - Lagarija, Sejla Cilovic
AU - Chileva, Anina
AU - Dimnjakovic, Jelena
AU - Vukovic, Jakov
AU - Dankova, Sarka
AU - Májek, Ondrej
AU - Vorobjov, Sigrid
AU - Idavain, Jane
AU - Rätsep, Merika
AU - Mäkinen, Mari
AU - Gissler, Mika
AU - Zeitlin, Jennifer
AU - Philibert, Marianne
AU - Carcaillon-Bentata, Laure
AU - Haneef, Romana
AU - Makovski, Tatjana
AU - Thißen, Martin
AU - Zile, Irisa
N1 - Publisher Copyright:
© 2024 The Author(s).
PY - 2024/7/1
Y1 - 2024/7/1
N2 - Background: Timely and high-quality population-level health information is needed to support evidence-informed decision-making, for planning and evaluation of prevention, care and cure activities as well as for research to generate new knowledge. FAIR (Findable, Accessible, Interoperable and Reusable) principles are one of the key elements supporting health research and making it more cost-effective through the reuse of already existing data. Currently, health data are in many countries dispersed and difficult to find and access. Methods: Two EU Public Health Programmes co-funded Joint Actions, Information for Action (InfAct) and Population Health Information Research Infrastructure (PHIRI) have established a European Health Information Portal, a web-based service, to facilitate better findability, access, interoperability and reuse of existing health information. Results: The European Health Information Portal (www.healthinformationportal.eu) has been established including sections on National Nodes, data sources, publications, health information projects within countries and across Europe, research networks and research infrastructures, ethical and legal issues for health information exchange and use, capacity-building activities in all areas of population health and a dedicated COVID-19 section. Conclusions: The European Health Information Portal, being a central place for a wide range of population health information from EU Member States, is an information source for researchers, policy-makers and other relevant stakeholders. It is important to ensure the sustainability of the portal, especially in light of the European Health Data Space (EHDS) Regulation proposal and its requirements regarding the secondary use of health data.
AB - Background: Timely and high-quality population-level health information is needed to support evidence-informed decision-making, for planning and evaluation of prevention, care and cure activities as well as for research to generate new knowledge. FAIR (Findable, Accessible, Interoperable and Reusable) principles are one of the key elements supporting health research and making it more cost-effective through the reuse of already existing data. Currently, health data are in many countries dispersed and difficult to find and access. Methods: Two EU Public Health Programmes co-funded Joint Actions, Information for Action (InfAct) and Population Health Information Research Infrastructure (PHIRI) have established a European Health Information Portal, a web-based service, to facilitate better findability, access, interoperability and reuse of existing health information. Results: The European Health Information Portal (www.healthinformationportal.eu) has been established including sections on National Nodes, data sources, publications, health information projects within countries and across Europe, research networks and research infrastructures, ethical and legal issues for health information exchange and use, capacity-building activities in all areas of population health and a dedicated COVID-19 section. Conclusions: The European Health Information Portal, being a central place for a wide range of population health information from EU Member States, is an information source for researchers, policy-makers and other relevant stakeholders. It is important to ensure the sustainability of the portal, especially in light of the European Health Data Space (EHDS) Regulation proposal and its requirements regarding the secondary use of health data.
UR - https://www.scopus.com/pages/publications/85197628583
U2 - 10.1093/eurpub/ckad172
DO - 10.1093/eurpub/ckad172
M3 - Article
C2 - 38946446
AN - SCOPUS:85197628583
SN - 1101-1262
VL - 34
SP - i29-i34
JO - European Journal of Public Health
JF - European Journal of Public Health
ER -